Today was the Botox day! We had an 8 am appt so we were up and out the door by 6:30, which was good since D couldn't eat or drink anything before the procedure. The hardest part (which the doctor warned us would be) was watching D go under general anesthesia. There were too many lights, sounds, monitors and a little toddler on a huge sterile bed in the OR. I was having NICU flashbacks. It was almost unbearable to watch D go from wide awake to passed out in 45 seconds. I held it together until he fell asleep then burst into tears.
He ended up with 5 injections. His right wrist and the abductors and calves of both legs. We were allowed back in the room after it was over to wait for him to wake up. It took about 10 minutes and he woke up and was in pretty good spirits.
Now he is home, eating and drinking and playing and seemingly back to 100%. We will start to see the effects of the Botox in 3-7 days. So now we wait. Fingers crossed we see some real improvements in his mobility.
2 years ago
