Help! Wheelchair modifications, anyone?
5 years ago
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About Me
- Kelly
- I am the mom to 4 year old boy/girl twins, Drake and Lucy, and a 1 year old boy, Everett. Our twins were born at 30 weeks and spent 2 months in the NICU. Our son, Drake, was diagnosed with PVL (Periventricular Leukomalacia) at 8 weeks old and Spastic Diplegia CP at age 3.
My Blog List
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Eleven6 years ago
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No Promises9 years ago
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So much to do, so little time!10 years ago
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Boys' New Bedroom - A Win-Win10 years ago
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What is this?10 years ago
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The Big Black Boot11 years ago
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One Year Post Surgery11 years ago
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Build a Fort12 years ago
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More amazing feats13 years ago
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My blog has moved13 years ago
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New Journal13 years ago
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Better late than never14 years ago
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Happy 2nd Birthday15 years ago
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6 comments:
Go Drake!
Congrats on a successful procedure! We also had a first today - casting for Constraint Therapy - true to form the child is doing much better than the mother. Did you cry at all? When mine was squirming and wailing while I held her down, I cried, now I feel all wrung out and she was so normal I put her in day care. We might do casting next month . . . I'm anxious to see how this goes for you guys. Well done, Mom.
He does look proud!
Tammy and Parker
www.prayingforparker.com
Love it! But then again, I'm partial to red boots :)
I've really enjoyed reading your blog and wish you posted more! Your son is a few years older than mine but there are a lot of similarities so I like to follow his progress.
Similarities:
1. I have twins, 1 typical, 1 with extensive, bilateral pvl.
2. Similar motor impairments - mostly affecting lower legs.
3. The affected twin is now 17 months and just started crawling on all 4s.
4. We live in California so have to deal with all the same agencies and cuts.
5. My son has same glasses, but gray, for strabismus. He just had strabismus surgery in August.
Anyway, if you need encouragement to keep posting, please do!
Julie Lewin,
Mom to Gavin Lewin, 3 and Ben and Rowan Lewin 17 months.
hi! i just found your blog :). congratulations!!!! i have boy-girl twins, too. my son, who is 3.5 months adjusted now, has cystic, bilateral PVL. I hope you don't mind if I link your blog to mine. I get really excited whenever I find a blog with people who are in similar situations.
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